On May 2, 2017, at age 27, my son Zak (Zachary) Anthony Jones chose to no longer live with the pressures, NVLD or what we called NLD created for him in this world. A silent disability, where schools, doctors, and most psychiatrists have never even heard of, or even want
Our journey with NVLD began 18 years ago, but we didn't know it until Katie was in eighth grade. We knew Katie was different. When Katie was a toddler, she threw tantrums like a hellcat. No amount of coaxing, cajoling or threatening would make Katie change her mind about anything.
“I don’t understand, if this guy is going to die soon anyhow, why would you want to put on make-up before meeting him?” “If the class is not a democracy, then basically you (the teacher) are the same as Hitler and Mussolini!” (not the most tactful thing to say at
Our son has always been the “smart, lazy kid” in school. His work is sloppy and assignments get lost or forgotten. But my “lazy” child works very hard. I understand that when you have a student in your class who sounds like an encyclopedia, it’s hard to reconcile educational expectations
I have ten children and one with NVLD. Anna is 13 and at the age of 10 suddenly many of the important people in her life started questioning if something was wrong with her because of her speech impediments, meltdowns when put under pressure in new environments, her tendency to
My daughter was diagnosed with ADHD at 8 years old as well as a spatial learning disability. I went to many national conferences and read every book I could to try and understand ADHD and learn how to be the best parent for her. We got the educational part of
I am a parent of a 22 year old who was diagnosed with NVLD when she was in elementary school. My daughter had absolutely no sense of direction which made the prospect of her going out in the world and navigating the streets of New York City (where we live) very scary.